Skip to content
Respite care

Respite care: what it is, how to get it and who pays

Respite care gives a family caregiver a break, for a few hours, a day or a short stay. It can happen at home, at an adult day center or in a residential setting.

12,179 providers 51 states

Get help finding respite care

Who is the care for?

Case manager or discharge planner?

Free·About a minute·Carevo is not a care provider

Or browse the list below

Respite care gives a family caregiver a break. Someone else looks after the person for a few hours, a day or a short stay, so the caregiver can rest, work, see a doctor or get away. Medicare does not cover regular respite, except during hospice care. Other sources are Medicaid home and community-based services, VA programs, some local caregiver programs and private payment.

This guide explains the types of respite care, who it helps, how to arrange it, how it is paid for and how to choose a provider. Carevo is a directory. It does not provide care or vouch for providers.

What respite care is

The Alzheimer's Association says respite care gives caregivers a temporary break while the person they care for keeps receiving care in a safe setting, and that its purpose is to support the caregiver's ability to keep caring over time. It adds that the person receiving care can benefit from interacting with others and taking part in suitable activities.

Respite is defined by its purpose, not by a single service. The same caregiver, adult day program or care community can be respite when it gives a family caregiver relief. For family caregivers who have been doing everything alone, a regular break is often what makes it possible to keep going. The caregiver burnout quiz and our guide on caregiver burnout signs and help are a good place to start if you are not sure you need one.

The main types of respite care

The Alzheimer's Association lists three settings. VA and Medicare describe versions of the same ideas.

In-home respite. A friend, relative, volunteer or paid worker comes to the house. The Alzheimer's Association says services can include companionship and supervised activities, help with bathing and dressing, household tasks like meals and laundry, or skilled care for medications and medical needs. The person stays in familiar surroundings. See home care, companion care and personal care.

Adult day centers. The person attends a daytime program with planned activities such as music and art, often with meals and transportation included. See adult day care.

Short stays in a care community. Some long-term care communities offer overnight stays lasting a few days or several weeks, which gives caregivers an extended break. See assisted living, memory care and nursing homes. The Alzheimer's Association says overnight long-term care costs vary and are usually not covered by insurance or Medicare.

Hospice respite. Under Medicare hospice, the hospice team can arrange a short inpatient stay to give the family caregiver a break. See hospice care.

Who respite care helps

How to arrange respite care: five steps

  1. Decide the length of the break. A few hours points to in-home or day program respite. Days or weeks point to a stay in a care community.
  2. Choose the setting that suits the person. The Alzheimer's Association says that if the person struggles with new settings, regular short stays can make adjusting easier.
  3. Find providers. Ask the person's doctor and your Area Agency on Aging. The Eldercare Locator (1-800-677-1116) connects you to local agencies on aging and community-based programs. The Alzheimer's Association points to its free Community Resource Finder. Browse respite providers on Carevo by state and city.
  4. Try it before you need it. The Alzheimer's Association recommends trying a provider in a non-emergency situation, so you are prepared if an urgent need arises.
  5. Book the next break before you need it. Regular, planned respite is easier to arrange than a last-minute request. Keep the medical team's contact information and a current medication list, with doses and frequency, where a stand-in can find them.

Matching respite to your situation

The right kind of break depends on why you need it.

Making the break work

A break helps most when you use it for yourself. A few things make it easier to switch off. Leave a short written note with the daily routine, medications the person takes (with doses and frequency) and the doctor's number. Give the worker your mobile number and a second contact. Tell the person what is happening and when you will be back. Then do something for yourself, even if it is only sleep. If the first break goes badly, change the length or the provider rather than stopping. The Alzheimer's Association says seeking help is not a failure.

How respite care is paid for

Medicare. Medicare.gov says Medicare does not pay for long-term care. The exception is hospice. Medicare covers short-term inpatient or respite care that the hospice team arranges, and you may pay 5% of the Medicare-approved amount, with the copayment capped at the inpatient deductible amount. Medicare home health covers part-time skilled care and aide help only while skilled care is also needed, so it is not a regular source of respite. See the Medicare guide.

Medicaid. Medicaid.gov lists respite care among the services a 1915(c) home and community-based waiver can offer, along with adult day health, homemaker, home health aide and personal care. States choose how many people a waiver serves, and eligibility, services and waiting times differ by state. Some states let participants self-direct. Call your state Medicaid agency or Area Agency on Aging. See Medicaid and long-term care, the state programs and paid family caregiver.

VA. VA says its respite care pays for someone to come into the Veteran's home, or for the Veteran to attend an adult day health care program, so the family caregiver can take a break. Nursing home respite, in a VA Community Living Center or community nursing home, should be scheduled in advance. All enrolled Veterans may be eligible if they meet the clinical criteria and the service is available, services vary by location, and a copay may apply. Primary family caregivers in VA's Program of Comprehensive Assistance for Family Caregivers get respite care of at least 30 days per year. Ask a VA social worker. See VA benefits.

Medicare's GUIDE dementia model. CMS runs a voluntary model called GUIDE for Medicare patients with dementia and their caregivers. Participating programs provide care navigation, a 24/7 support line, caregiver training and respite, which CMS describes as temporary relief that includes in-home care, adult day programs and facility-based respite. CMS says respite is capped at a set dollar amount each year per eligible patient. It is not available everywhere, and you need a participating program, so ask the person's doctor whether one serves your area. See dementia care.

Long-term care insurance. A policy may help pay for respite. Whether yours does depends on the policy. Call the insurer and ask. See long-term care insurance.

Private pay and local help. Many families pay privately. The Alzheimer's Association suggests asking providers about scholarships, sliding-scale fees and government programs, and contacting your local chapter. See private pay.

What drives the cost

Carevo does not publish a price for respite care. What moves the bill:

How to choose a respite provider

  1. Describe the person. Care needs, routines, health conditions, behavior, what calms them, what upsets them. A one-page note helps any provider.
  2. Ask about training. The Alzheimer's Association says to ask about training and qualifications, and that agency and care community staff are often certified. If hiring independently, it says to interview the person thoroughly and check references.
  3. Visit and meet. For a day program or community, visit. For in-home, meet the worker before the first break.
  4. Start short. A first break of a couple of hours lets the person adjust and lets you see how it goes.
  5. Check the terms. Rates, minimums, cancellation, and what happens if the person has a bad day.

Questions to ask

Red flags

Next steps

  1. Take the caregiver burnout quiz if you are not sure how much you are carrying.
  2. Call your Area Agency on Aging through the Eldercare Locator (1-800-677-1116).
  3. Test hours in the home care hours cost calculator.
  4. Tell us what you need and we will show providers in your area. You decide who to call.

Respite care by state

Largest cities

New York, NY · Los Angeles, CA · Chicago, IL · Houston, TX · Phoenix, AZ · Philadelphia, PA · San Antonio, TX · San Diego, CA · Dallas, TX · Jacksonville, FL · Fort Worth, TX · San Jose, CA · Austin, TX · Charlotte, NC · Columbus, OH · Indianapolis, IN · San Francisco, CA · Seattle, WA · Denver, CO · Oklahoma City, OK · Nashville, TN · Washington, DC · El Paso, TX · Las Vegas, NV · Boston, MA · Detroit, MI · Louisville, KY · Portland, OR · Memphis, TN · Baltimore, MD

How respite care is paid for

  • If someone is on Medicare hospice care, Medicare covers a short inpatient respite stay that the hospice team arranges.
  • Medicaid home and community-based services (HCBS) let people who qualify for Medicaid get care at home or in their community instead of an institution. Your state Medicaid agency decides who qualifies.
  • Many families pay privately, and some long-term care insurance policies pay toward care. Check what your policy covers before care starts.

Common questions

What is respite care?

Respite care is short-term care that gives a family caregiver a break while the person they care for keeps getting care in a safe setting. The Alzheimer's Association describes it as in-home care, adult day centers or short stays in a long-term care community.

Does Medicare cover respite care?

Only in one case. Medicare hospice covers short-term inpatient or respite care that the hospice team arranges, and you may pay 5% of the Medicare-approved amount. Medicare.gov says Medicare does not pay for long-term care, so regular respite for someone who is not on hospice is not covered by Original Medicare.

How much does respite care cost?

It depends on the type and the setting. In-home respite is usually billed by the hour, adult day programs by the day and short stays in a community by the night. Carevo does not publish a price. Ask each provider for its rates in writing, and ask what a funding program will pay.

How can I get free or low-cost respite care?

Ask your local Area Agency on Aging, reached through the Eldercare Locator at 1-800-677-1116, about caregiver programs. Medicaid home and community-based services can include respite for people who qualify. VA pays for respite for enrolled Veterans who meet its criteria. The Alzheimer's Association suggests asking about scholarships and sliding-scale fees.

What does the VA offer for respite?

VA says respite care pays for a person to come into the Veteran's home, or for the Veteran to attend an adult day health care program, so the family caregiver can take a break. A nursing home stay is also possible and should be scheduled in advance. Primary family caregivers in the Program of Comprehensive Assistance for Family Caregivers get respite care of at least 30 days per year. A copay may apply.

How do I find emergency respite care?

Call the Eldercare Locator (1-800-677-1116) or your local Area Agency on Aging and ask what is available at short notice. The Alzheimer's Association recommends trying a provider in a non-emergency situation first, so you are prepared if an urgent need arises. For a medical emergency, call 911.

Can I use respite care if the person has dementia?

Yes. The Alzheimer's Association describes respite for people living with dementia, and says the person can benefit too. Ask each provider about dementia training and experience. If the person struggles with new settings, the Alzheimer's Association says regular short stays can make adjusting easier over time.

Does Carevo provide respite care?

No. Carevo is a directory and connection platform. It does not provide care, employ caregivers, assess eligibility or vouch for providers. We list providers and you check each one.

Sources